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      » The Andy Fund - Describes the health condition of a boy who was born with ectodermal dysplasia with immune deficiency caused by a mutation on the fourth part of the NEMO gene.

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      » The CaF Directory - Information about the ectodermal dysplasia disorders, the inheritance patterns and pre-natal diagnosing.

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      » The Ectodermal Dysplasia Mailing List - Includes instructions on joining the list, FAQs and links to further resources.

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      » Ectodermal Dysplasia Society - Information about the organization as well as the ED condition. Includes links, news articles and contact details.

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      » National Foundation for Ectodermal Dysplasia - ED organization based in North America offering information/advice to individuals and supporting scientific research. Includes a newsletter, publications, FAQs and a list of services.

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      » NORD: Ectodermal Dysplasias - Offers synonyms, a general discussion and resources.



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