Top: Health: Conditions_and_Diseases: Genetic_Disorders: Epidermolysis_Bullosa:

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• Health: Conditions and Diseases: Skin Disorders  (389)

» DebRA International   - Dystrophic Epidermolysis Bullosa Research Association. A voluntary, non-profit organization dedicated to creating awareness and providing support for families affected by Epidermolysis Bullosa (EB). Includes treatment and care information, latest research, organization history, and forums.




» Cristina's Castle in the Clouds - Information and support for those interested in a skin disorder called epidermolysis bullosa. Message board and also a list of camps for children with this disorder.




» DebRA Australia, Queensland Branch - Features disorder information, organization background, publications, photo gallery, and information about the NSW branch.




» DebRA Canada - Includes articles, news, and information about this genetic disorder.




» DebRA of America - Offers information, news, newsletters, support, and resources.




» DebRA UK - Features organization background, information about the disorder, fundraising and research details, and news.




» EB Info World - Information, mailing list, pictures, and help for new parents.




» EB Medical Research Foundation - A volunteer, nonprofit foundation dedicated to the support of medical research about this disorder. Includes information about research, videos, and organization information.




» Epidermolysis Bullosa - Through the Eyes of a Patient - A young woman presents medical information, research updates, photographs, recipes, and support group listings, as well as her own experiences with the condition.




» International EB Forum - Includes downloadable articles and booklets as well as links of interest. Also offers password-protected forums for professionals.




» Jonathan's EBzone - The author shares her son Jonathan's crusade and life with Epidermolysis Bullosa (EB), a rare genetic disorder.




» Yahoo! Groups: EBworld - Mailing list support group for parents, patients, and those interested in learning about disease.

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