Top: Health: Conditions_and_Diseases: Neurological_Disorders: Epilepsy: Personal_Pages:

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• Society: Disabled: Personal Pages  (29)

» Baby Bryant My Hero - Bryant Lee Weasel's story about his struggle with Dravet Syndrome.




» Crazy For Cody - Cody has infantile spasms, a particularly nasty epilepsy starting in infancy. See video's, the photo gallery, treatments tried and support resources.




» Dangerously Rare: Dravet's Syndrome - Anna is a student at UNC-G majoring in Speech Pathology. Here she explores the intricacies of this condition. Analysing an article titled "Coping with Dravet syndrome: parental experiences with a catastrophic epilepsy."




» A Dream for Sarah - Offering personal insight into raising a child with Dravet Syndrome, also known as Severe Myoclonic Epilepsy in Infancy. Offering Sarah's story, information on 4 Paws and the Keto diet.




» Epilepsy Foundation: Heroes Among Us Directory - Over 600 personal stories of those effected by epilepsy. Describing their fears, courage and triumphs.




» Epilepsy Health - Author Sally Fletcher shares the complementary practices that have helped her remain seizure free for 18 years - without medication.




» Experience Project: I have Epilepsy - Personal life stories from those who experience epilepsy and seizures.




» Growing Up With Epilepsy - Two fifth grade students in NYC Public School 56 designed a site on epilepsy based on the personal experiences.




» Hannah's Story - Providing information, links and poetry dedicated to Hannah's struggles with Lennox-Gastaut Syndrome, a debilitating form of epilepsy.




» Hope for Sydney - The story and of a 6 year old girl with a catastrophic form of epilepsy and gobal regression, Dravet syndrome (SMEI). Offers support and resources for special needs kids.




» Infantile Spasms - Broc's Story - The story of Broc Bartenhagen who was diagnosed with Infantile Spasms. A summary of tests performed, treatments and tried therapies.




» Infantile Spasms and Surgery: Alex's Story - Follow this families fight against epilepsy. Explore how radical brain surgery gave this little boy a second chance at a normal life.




» Jacob's Infantile Spasms - See how Jacob bet the odds by not meeting the poor prognosis expected with this usually debilitating condition.




» Julie Dennison: Living with Epilepsy - A sufferer from epilepsy all her life, Julie now lectures and writes on the subject. Samples of her work are included on the site.




» KIDZ - Parents of Chloey share their daughters story of having infantile spasms. Includes videos of Chloey's seizures and photographic slide shows.




» Mackenzie and the Diagnoses of Epilepsy - Explains how epilepsy was diagnosed in this little girl. Offering journals on their journey, information about the ketogenic diet and epilepsy signs and symptoms.




» Matthew Crossland - A mum tells the story of her sons battle with epilepsy since 3 months of age and the subsequent developmental issues.




» A Miracle for Alex - Providing information about Dravet Syndrome from a parent perspective. Includes Alex's story, his angels, photographs and resources.




» Our Pyridoxine Dependency Story - Epilepsy and Vitamin B6 - A genetic disorder which results in seizures and developmental delays. Personal account of a journey from the first seizure to diagnosis in twin boys.




» Shazza's: Dealing with Dravet Syndrome - A parent of a child with Severe Myoclonic Epilepsy of Infancy shares her experiences with the condition. Offering activities for the kids, epilepsy events and a laymen's description of Dravet's.




» Understanding Epilepsy - Explains the disease, its symptoms and treaments, as well as providing first aid and safety advice.




» Walking for epilepsy - Chronicles the journey of Karla Brown as she walks 9000 miles across America to raise awareness of epilepsy.

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