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      » Chase's Story - Personal account of one child's experience of this condition. Includes photographs.

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      » Contact a Family: Pierre Robin Syndrome - Main features of the condition and possible causes.

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      » NORD - Pierre Robin Syndrome - Sample report, plus links to organisations. [Fee required for full report]

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      » Pierre Robin Network - Provides general information about the condition, including genetics, issues and a glossary. Also offers an email group, message board, and personal accounts.



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