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      » Aled Thomas Griffiths - A collection of information, events and pictures detailing his life story.

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      » Alison Green - Journal based on her life, detailing events throughout her life.

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      » Andrei Fagurel - Website dedicated to Andrei, the people that helped him, and those who want to find out more about his life.

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      » Benjamin Rockey - Journal detailing the events of a little boy with this condition.

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      » Hannah's Story - Story of a little girl, detailing this condition as well as heart conditions.

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      » Lily Hansen - Information keeping friends and family updated on her progress.

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      » Ryan's Life - Story of Ryan Sherman detailing events throughout his life, from birth to present day.

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      » Schmidt Family Blog - Online journal about daily life with an affected child.

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      » Zoe Lambert - Personal account of this condition, and surgery to receive titanium rib implants.



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